Total Pageviews

My family

Embrace Today By: K. Wilhelmina Floria

Tears of happiness shall fall,
listen close for your destination call.

A river of tranquility flows through life.

Ride out the eye of the storm, pass the strife.


Monday, January 31, 2011

Me Verse Lupus: The end of my story

Me Verse Lupus: The end of my story: "I am still battling this fatigue. I went to my daughters early Saturday morning. I was there by 8am because she had to work. My ..."

The end of my story

I am still battling this fatigue.  I went to my daughters early Saturday morning. I was there by 8am because she had to work.  My son was coming with an escort from the rehab to get his clothes and stuff.  My daughters' father was suppose to be going out. When I arrived, remember what time I told you it was, her father just woke up and was drinking, not orange juice, brandy. He was okay for an hour or so. My son called and said he would be there soon. I asked the father to move his empty bottle, he gets all nasty it's empty. Empty or not it puts the idea there.  So my son comes everything is fine he and the escort eat and hang for a little bit then leave.  My daughters' friend was there and when they live she asks me where my son was going, I tell her to rehab and that the guy was an escort.  I say to my daughters' father that's why I asked you to move the bottle. He gets nasty and says, I did, but it was empty and I live here.  I got so pissed I went into the bathroom to keep from saying.  "Mother fucker, this is my daughters' place and that is her brother she cares about. I didn't ask you to stop drinking I just ask you to put move the bottle." I didn't want to further go off and say, " You don't pay rent, you live off my daughter you spent a couple of thousand dollars on a computer and desk and took the chair my daughter brought for her computer desk to use. You got a check last year to baby sit the kids, this year you don't babysit, maybe once and  a while you take them to school.  My daughter wanted to go to school and she worked around your schedule but you went and changed yours so you wouldn't have to baby sit.  And your ass is still getting a check from public assistance for babysitting. And you don't give my daughter, your child any money. You use the electricity and cable line. You never paid me any child support at all.  You are a selfish son of a bitch.  This is why you are a drunk because you are unhappy no one wants to be around you too long. You're a freak."  But I didn't say any of this because I don't like to make waves. But at least I got it out on this blog.  And it felt good.

I got home about 8pm that night.  I was tired and I had to go to the rehab to do a family visit with my son. My mate wasn't feeling well, she ate an old tangerine and her stomach was upset, but not only that she was having pains in her left arm.  In the morning her arm was still hurting, she was up most of the night in the bathroom, so she wanted to go to the ER. Imagine going to the ER with someone and not for myself. I call the rehab and tell them I can't make it.  We sit in the rehab for a few hours and everything is fine and we come back home.

Tomorrow I'm suppose to meet this woman to help me with the medicare. It's suppose to snow again, another major storm.  I don't know, I think I should reschedule, I don't want to get into Manhattan and get stuck.  The problem is the womans' phone only takes messages and she only comes in on Tuesdays.  something so minor as this stresses me out.

I'm almost caught up to this day with my life.  I mentioned though out my story how mean my mate is. Don't get me wrong,  she  has a kind nature about her.  She is considerate of my well being.  She will do what ever she can to make me comfortable, as long as it doesn't inconvenience her.  She doesn't care what she says or how it hurts. She knows that I'm sensitive, but she will say things to hurt me. If I point out a flaw of hers', she will do a tic for tack thing. She gets defensive and tells me what my flaws are.  Let me tell you I have hundreds. I talk too much, I don't remember to put things away. I sort my pills and sometimes they fall to the floor. Sometimes I can't find them, she tells me I don't look.  She doesn't understand that I can't remember things.  She tells me I'm lazy because I can sit at the computer but can't sweep the floor or something. The list can go on and on and on.  I spend a lot of time crying, but that's me.  To be honest the only person I expressed myself to freely and who understood me was Mr. 23 years, but he couldn't make me happy he had his negative ways. I guess I was meant to be alone like my mother.  I don't know what kind of person I want in my life. Maybe it's me, like my brother said. I'm a fuck up.

My mate, when we first met she would buy me gifts, pocketbooks, jewelry and take me out to eat.  She buys me clothes still but she gets me men's clothes because that's what she wears.  I don't want a mens' jacket. She made promises when we met, but it ain't no different then a man who tries to woo you.  She said she would take me on a cruise and it hasn't happened.  She still talks about it but I won't hold my breath.  She doesn't even take me out locally. I only have her winter and spring concerts to look forward.  I enjoy myself but it's not like going to a play or even a movie. We use to go out to eat, but now I should be happy to get a whopper when she comes in from the bar.  Where she is if she doesn't have rehearsal. I am left alone so often, but it's not like I live alone because I am really nothing more then a guest.  She will tell someone quickly that I'm her lover but I have no rights in the place I live. This is what hurts me the most. Being homeless. She's mellowed out a bit but I still have to remember to put everything away.  I write and I like to have my papers around me but I can't I have to put them away and I end up hiding them a losing them because I can't remember where I put them.

She will encourage me to lose weight but turn around and fix me something to eat and pile the food on my plate, no matter how much I tell her not a lot.  I like that she tries to take care of me but in the next breath she'll cuss me out. I say she's bi-polar and needs medication.

She has no interest in marriage.  I don't want to marry a woman, but her stand is that she doesn't believe in marriage because of the community property thing.  Her philosophy is what's mine is mine and what's yours is yours.  I live here and her mother and her will say that's your potatoes or juice or what ever.  We share food and drink, but saying that's yours makes me think twice about eating or touching different foods or things. 

I don't know, I grew up in a household where we respected each other and ;listened to each other.  I raised my children in a house hold that may have been dysfunctional but we respected each other.  I'm living now in a household that everyone yells when they talk and are cold and harsh and sarcastic when they speak.  I try to stand on my own feet but I'm not a fighter so I get stressed and nervous. I live my life on the computer, I get lost in my television shows, books or I go to sleep and try to dream a better life.  This was my story.

This blog has ended I will start another blog soon. It will deal totally with lupus. I hope to write about my trails in a way that it will educate those who are struggling through this disease and for those who have family or friends with lupus.  I hope to write a piece worthy of publication.

Until them my readers God bless.

This is a picture of Mr. 23 & me.