I woke up this morning feeling good. Well actually I went to bed feeling good. I took the hair off my face. I used this Mary Kay facial stuff, I curled my hair and wrapped it. I got my clothes together for today and went to bed. Despite that my son got himself kicked out of rehab, and got drunk and went to his sisters house and she was angry with me. My grandson went to the ER and was diagnosed with bronchitis, that's where the subject of my other blog came from. I heard that she got into a physical fight with her on again off again boyfriend. But despite this drama I still felt okay.
On Saturday I accompanied my mates niece to an audition for the All City Choir, they were having a rehearsal, she auditioned during a 10 minute break and got in. I really enjoyed watching them rehearse.
Today I went to see the Rhuematologist. There goes my good mood. This is the second time I saw her. First they couldn't find my chart, and when they did they only had one page of my medical history she took. She askes a few questions and talks with my actual doctor. She is doing a study of lupus. Her concern is my weight, which is mine too. She says I probaly have PH because of my weight. Now I read that weight has nothing to do with the PH. I said nothing. She said she doesn't think I have Lupus. She wants to know what kind of markers I had. I mentioned the hair loss, the false positive syhilis, allergy to sulfa drugs, photo sensitivity, the rashes. She says those aren't symptoms. My blood work is good right now. I've been on steroids for two years and about four months now. I've been taking cellcept for almost two years and I've been on plaquline off and on for I guess two years. Do you think maybe the drugs are doing what they are suppose to? She claims my weight is the but if my health problems. I was over weight before I was diagnosed with lupus. When I got sick I was losing weight anothe symptom. Oh got so pissed.
I've been home since 1:30pm at 2:30pm I pulled out all my blood work I had since I was diagnoised, I went on WebMd and looked up the laboratory tests used to diagnoise lupus and evaluate sle. Guess what, there are 17 markers, this includes test for renal function. I had 9 markers when I was first diagnoised.
I see the doctor I choose to be my Rhuematologist on the 20th., if he agrees with her. I will be looking for another Rhuematologist. I can't believe this. I'm so damn angry, if I don't have lupus why am I taking all this fucking medication. Why? That woman is a quack!!
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Embrace today.